Welcome to Maddie's Blog!

Hallie and Maddie were born in January 2007. Maddie experienced severe hypoxemic respiratory failure at birth, and spent her first five months at Children's Memorial Hospital in Chicago. Both Maddie and Hallie have been diagnosed with ABCA3 'abnormality.' Maddie developed chILD and Hallie is currently asymptomatic. Maddie is on oxygen 24 hours a day (05. LPM baseline) and gets G-tube feedings.


Friday, January 11, 2008

State of IL and Home Care Help

We've been experiencing a bit of a crisis involving home health care. It's a long story - but becasue of this crisis, I've been searching for assistance in IL. I found an old letter that outlines all of the State of IL programs available to parents with chronically ill children. I will scan that letter and post it on Maddie's web page - in case a fellow Illinoian needs to navigate the 'resources' available.

http://blue.wths.net/faculty/schmit/maddie.htm

No comments: